If you or a member of your family has been recently diagnosed with XP and wish to be in contact with other families, by e-mail , please join Light conversations. An email mailing list restricted to patients and families of patients, plus medical professionals specializing in this field.

Please also contact Pat at the XPS (pat@xps.org) saying why you wish to join.
Or click here to go to the www.lightconversations.org website.