In memoriam Steven

In Issue 3 (September 1999), we published the story of Steven, by his friend Ian. It is with great sadness that we announce the passing of Steven, aged 18, on Friday 15 September. Steven's story was an inspiration to many people and he will be greatly missed. Our thoughts are particularly with his grandparents who brought him up. Below are a few words that we received from his friend Ian:

"It is with great sadness that I have to inform you that my friend Steven Williams passed away this morning. He died peacefully at Bangor Hospital with his family around him. He was in no pain. XP has sadly claimed another special person. His tumour had grown so big and so quick, he could take no more. It is my personal hope that his medical history will not just be filed and forgotten, for I believe his history could greatly benefit the research into XP. I will work on this, as and when, the time is right and his family have come to terms with their loss. Please always continue the work you do for people with XP."