XP Support Group: August 2007

XP Support Group

The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend Camp Sundown or respite in a protective environment.
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We strongly encourage you to visit the XP Society web site, and invite you to return here for UK specific content and information.
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UK Registered Charity Number: 1075302 : Click here to Donate :

Sunday, August 26, 2007

Sunsibility

SunSibility individually manufacture sun protective clothing for children & adults.

All clothing has a built in SPF 50 and the company can double the fabric on most designs to offer a higher protection. Gloves, Socks, Tracksuits and Face Protection are all available along with a selection of High Factor Sun Creams & complimenting accessories" People can also design there own adding Vinyl Print, Embroidery and Diamante to make their outfits a little more Unique !

More details at: http://www.sunsibility.co.uk/

XP Support Group

Sunday, August 26, 2007

The March 2007 Newsletter is here

Sunsibility

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