Jeans for Genes 2006 - Friday 6th October 2006!

The XP Support Group has been selected as a guest charity for the 2006 Jeans for Genes (J4G) Appeal. It is an annual national appeal to everyone to wear jeans or denim for one day instead of their normal uniform or working clothes. As it is always on a Friday it means a fun day and a change from the norm for most people who go to work or school in smart clothes. Everyone who puts on their jeans is asked to donate to the appeal - £1 for schoolchildren, and £2 for those taking part at work.

This year the date is Friday 6th October 2006, and this year’s theme is Dress to Impress and make an impression on a child’s life – so it isn’t just jeans but it should be denim.

So why does J4G need to raise money? One child in 33 in the UK is born with a genetic
disorder. We all probably know someone who is affected but many genetic disorders,
including XP and other light sensitive conditions, currently have no cure. This situation will not change without the money raised by appeals like J4G. The money is used in two ways; to fund much needed research projects, and secondly, to support affected families through day-to-day services, counselling and advice, local clinics, respite care, away days and specialist nurses. In the case of the XP Support Group J4G want to help us to provide more and better counselling to families and also with running our support effort.

Click here to read more:

Final Accounts for the year to March 2006

2006 Annual reports are here

All the annual reports are here